I’d like to start this post with a dedication to my lovely fiancé Carl- It is our 8 year anniversary today and I would like to dedicate this post to you for all that you have done for me over the years and especially this past year- You have been my absolute rock and beaming light of positivity in the days when there has been darkness…all I want to say now is bring on the wedding next year! Xxx
So today BB’s marks the one year anniversary of my diagnosis. It was around this time that I was waking up last year, two cannula's in the crook of my arms, thinking “that was pretty scary” as I couldn’t remember too much about the seizures at that point…and then the tumour news came from the doctors…and life hasn’t really felt the same since. It’s so hard to explain unless you are on this journey too, but knowing a little bit more about your body (and its faults) can open up many worries but also it helps you live life in a way that you never did before- every moment becomes more precious, every birthday and anniversary more special and every event or moment that you share with loved ones even more significant and treasurable.
I have also officially made it 1 year seizure free, however in order to get my driver’s license back I need to be seizure free until one year post op (23rd Oct) so I am keeping everything crossed for that one!
I have met so many wonderful people over this year, some whom I would have never met otherwise- although it is bittersweet in many ways and I have experienced some difficult times with these people, nonetheless I am honoured to have met you. To Ben, To Cass, To Ryan (FTGF), To Karen, To Will, To Lu, To Nick and Niki, To Liz, To Lorraine, To Kerri, To Nancy and to all the other people or anonymous people I have met through the world of blogging and beyond- thank you and lots of love. If I have missed anyone here I am sorry. To those who are sadly no longer with us- thank you for all you have taught me and shared with me.
To my team at NHNN- Again I can never say enough thanks and I hope our journey together continues to be a good one.
To Helen at Brainstrust- Thank you for being there in my hour of need and to the community I have met through the online support- Thank you. If anyone out there would like some support I cannot praise the services of Brainsturst highly enough. I have mentioned them before but if you have not got in touch with them beforehand and are a patient or carer of a loved one living with a brain tumour then please see: http://www.brainstrust.org.uk/
To all my friends and family (far too many to mention!) I love you all!!
So in a nutshell what have I been doing for the last few weeks and months?? Well work has been the main part of getting back to a semblance of normality. It has also been therapeutic in ways to be back in a routine and also surrounding myself with others and escaping the living, breathing, eating and sleeping, all-encompassing world that can be brain tumours and brain cancers.
There has been lots of fun times the past few months hence my lack of blogging. Carl turned 30 and we had an awesome time in London (see pictures!) My best friend Jo also had her birthday and we had a wonderful time at a comedy night seeing a comedian who we saw when we were younger and adored- you know the saying that goes ‘never meet your heroes’ well that kind of applies to that night! There has also been a trip down to Devon.
There have been hospital appointments mainly to see the Neuro Rehabilitation Team and Psychology Team who have been instrumental at keeping me in work but also keeping me feeling well and positive. Mum and I still continue to try and make a day or evening of it when I have hospital appointments. Last time we went to see 'Fatal Attraction' and I even got to meet one of the stars of the show Kristen Davis- wow talk about starstruck- she was absolutely gorgeous in real life and those of you who have met me know that I am a huge SATC fan so this was just one of those surreal moments in life!
We’ve also now hit over 11,000 hits to this little blog so that’s pretty awesome too :)
All in all life continues to be good and I am trying to be kind to myself.
Sending lots of love to everyone,